Monday, June 29, 2015

16 Days And Counting

I checked my right hearing aid and it is working again.  I think I will keep it in the dryer box until my eligibility evaluation. I need both hearing aids for the evaluation and the weather here has been rainy most afternoons.  I don't want to take a chance on it quitting again.  My left hearing aid has not had similar problems so I will continue to wear it.

Today, I sent Scott R.,Cochlear employee,  a message with a link to the Cigna policy I found on line.  I am trying to alert Cochlear that the current Cigna policy, that denies funding for Hybrid CIs,  is up for review next month. The current policy considers Hybrid CIs experimental.  I am hoping that Cochlear has someone on board that follows this type of information and who advocates with the insurance agencies during their policy reviews. The best case scenario is Cochlear will provide information that will promote Cigna to change their policy in advance of my needing the policy.

My hearing aids are nearing the end of their lifespan.  The last quote from a for profit company was $7,000 for two hearing aids. Insurance covers the audiological evaluation but will not cover hearing aids.  As I understand it, the Division of Vocational Rehabilitation will cover the expense for basic hearing aids but not the newer model that was recommended. After the quote from the for profit and my right hearing aid breaking, I went to  Florida State University's Schendel Speech and Hearing Clinic looking for more options. C. Johnson, audiologist,  told me about Hybrid CIs.

But are Hybrid CIs really an option for me? I am reluctant to get more hearing aids.  It will be more of the same.  Hearing aids amplify sounds. My high frequency loss is a sensorineural type of damage. So no matter how loud you amplify the high frequency sounds, I am not going to hear them.  Hybrid CIs offer something different.  Hearing aids to amplify the low frequency sounds and CI to recreate high frequency sounds for the auditory nerve to pick up. If the insurance says no, I don't know what the next step will be.

For now, I must practice patience.




Saturday, June 27, 2015

Right Hearing Aid Died Again

My right hearing aid died again.  In April, I went to Florida  State University's Schendel Speech and Hearing Clinic  to get it fixed and it started working on its own. Lucky me.  That appointment at FSU lead to discussion about a Hybrid Cochlear Implant.   I have decided I am very interested in the implant.  Well, my interest is to be able to better participate in conversations and implants are the only thing that offers that potential now.

However, I need both of my hearing aids to last through the evaluation process. The hearing aids are about ten years old so I think I am pushing their lifespan. As yesterday was a rainy day, I put the hearing aid in a dry box in the hope that it is just moisture fouling the connections.  If it is not working by Monday, I will have to call C. Johnson to see what to do next. I am hopeful either that the aid dries out and begins working or this does not cause a delay in the evaluation process.

Thursday, June 25, 2015

20 Days And Counting

I have an appointment for eligibility evaluation for Hybrid Cochlear Implant in July 2015.  Since the appointment was set,  I have been furiously researching through the Internet and reading books. There is a lot of information out there about Cochlear Implants but not so much about Hybrid Cochlear Implants.

While I am not eligible for Cochlear Implant, I may be eligible for the Hybrid.  I have bilateral moderate loss in low frequency sounds with sharp sloping loss in high frequencies.  Thus, I can hear vowels but not many of the consonants (i.e., s, sh, ch, z.) I am highly dependent on speech reading; meaning that I am dependent on people facing me to have any type of quality in conversation.  Still women's and children's voices tend to be in higher frequencies resulting in difficulty following conversation even when I can see their lips. Conversations in noisy environments?  Impossible.

As of now, I am aware of two potential stumbling blocks to my eligibility. My hearing loss is longer than 30 years and Cigna insurance covers Cochlear Implants but not Hybrids. The good news is Cigna's current policy is up for review this July.  Maybe they will no longer consider Hybrids experimental. Maybe, at the same time, I meet all eligibility requirements Cigna will approve the surgery.  It could happen...

I'm a little disconcerted that one clinical study indicated almost 20% of participants reported no change in their speech recognition. Still 80% saw little to great improvement.  Around 6% loss residual hearing.  So there is definitely a risk to this surgery but, if approved, I would be doing one ear - my least functional ear - not both.

Now, all I have to do is practice patience. I am ready to get this process moving. To help me wait, I would love to hear from people with experience with Hybrid Cochlear Implants.